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"The thought of losing my sight is such a daunting prospect”
Latest news, posted 12 August 2019
Julie, 42, was diagnosed with macular disease in her early 20s and assumed it would be a long time before her eye sight started to deteriorate.“I had been so blasé about being diagnosed with macular disease, due to not having any symptoms for such a long…
Do you know the difference between wet and dry AMD?
Latest news, posted 19 August 2019
People diagnosed with age-related macular degeneration (AMD) will be told if their condition is ‘wet’ or ‘dry’.This distinction affects whether the condition can be treated or not, its progression, and how you need to monitor it.
Long-term exposure to air pollution could heighten AMD risk
Latest news, posted 22 August 2019
Taiwanese researchers have highlighted an association between long-term exposure to air pollution from vehicle exhaust and an individual’s risk of developing age-related macular degeneration (AMD).
Gene therapy for rare eye disease set to be offered on NHS
Latest news, posted 4 September 2019
A gene therapy for a rare inherited eye disorder which can improve vision could soon be available on the NHS.Today the National Institute for Health and Care Excellence (NICE) has recommended Luxturna (voretigene neparvovec) for use in the NHS in England…
“It’s possible a cure won’t be found in time to help someone like me. But, something is being done.”
Latest news, posted 9 September 2019
Bill knew that his life would change following his diagnosis of macular disease, but he did not want to simply give up.He said: “When I was diagnosed in 2015, I’d never heard of macular disease, didn’t have a clue what it was; it was a real hammer blow.“…
One in four of the research projects we fund is made possible because someone remembered us in their Will.
Latest news, posted 11 September 2019
This week is Remember a Charity Week, when people across the UK are encouraged to leave a gift in their Will to their favourite charity, after taking care of family and friends.Our legacies manager Julie Edwards says: “It’s a great opportunity to think a…
Eye health research gets a major funding boost for use of data
Latest news, posted 11 September 2019
The research collaboration Action Against Age-related Macular Degeneration, set up by the Macular Society and other charities, is now part of a brand new government-funded push to find new cures for eye diseases.AAAMD is a partner on a project that aims …
“I felt like the world had stopped and I was all alone and very scared.”
Latest news, posted 16 September 2019
At the age of 13 Faith started noticing that she was struggling to see the board at the front of her classroom.She said it felt as though just overnight things that were once clear and focussed were fuzzy and blurred.She was a backstop in the school roun…
Stargardt awareness boosted as football legend Owen reveals son’s diagnosis
Latest news, posted 16 September 2019
The urgent need for clinical research into macular dystrophies has been highlighted after football legend Michael Owen revealed that his teenage son has a rare form of macular disease.The former England striker has brought Stargardt disease sharply into …
High profile eye surgeon struck off
Latest news, posted 19 September 2019
High profile Harley Street ophthalmologist Bobby Qureshi has been struck off for lying to patients about being able to restore their sight after the Macular Society submitted a complaint to the General Medical Council (GMC).Mr Qureshi carried out eye ope…