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"Without speaking a word, my cane tells my story”
Latest news, posted 31 January 2025
For Rita, a simple white stick helped her overcome her embarrassment of losing her sight and helped her communicate her sight loss to others.
“I wanted to know what I could do to try and help myself”
Latest news, posted 3 February 2025
Claire found herself “alone and lost” as she tried to come to terms with her Stargardt diagnosis, not knowing anybody else with the rare form of sight loss.
Syfovre FAQs and next steps for dry AMD and geographic atrophy treatment
Latest news, posted 30 January 2025
The UK’s Medicines and Healthcare products Regulatory Agency (MHRA) decision to reject the first potential treatment for geographic atrophy (GA), or late-stage age-related macular degeneration (AMD) is undoubtedly a disappointing one for those living with the condition. But, what does the decision mean? We answer your questions.
“The Christmas appeal inspired me to carry on fundraising”
Latest news, posted 26 February 2025
After playing a key role in the Macular Society’s Christmas appeal in 2024, ten-year-old Archie is stepping up his fundraising efforts as he plans a new challenge to raise vital funds for research.
“I'm still really scared of losing what sight I have left”
Latest news, posted 28 February 2025
Kate’s first experience of her rare macular condition happened 16 years ago, when she suffered a bleed in her right eye. It left her with peripheral vision only, though a timely injection halted any further sight loss.
Gene therapy trial improves sight in blind toddlers
Latest news, posted 4 March 2025
Four toddlers born with a severe form of childhood blindness have experienced “life-changing improvements” to their sight after participating in an experimental gene therapy trial.
Professor Andrew Lotery answers your questions
Latest news, posted 5 March 2025
Professor Andrew Lotery discusses the latest approved treatment for wet age-related macular degeneration (AMD), Lytenava and answers your frequently asked questions on treatments and research.
“I used to cry in the shower – there was so much anger”
Latest news, posted 13 March 2025
Counselling has been a “lifechanging” experience for Trevor, who hit his lowest point when macular disease began to impact both of his eyes.
How to make the most out of your optician appointments
Latest news, posted 26 March 2025
From what to ask your opticians, to a guide on what to take with you to an appointment, the latest episode of the My Macular and Me podcast looks at how you can make the most out of your optician appointments.
How could the proposed changes to benefits affect you?
Latest news, posted 28 March 2025
The Government has launched a public consultation on major changes to health and disability benefits, as well as employment support.